Designing research with hospice and palliative care populations

Am J Hosp Palliat Care. 2012 Aug;29(5):335-45. doi: 10.1177/1049909111427139. Epub 2011 Nov 21.


Research in palliative care and hospice populations is important for improving quality of care, quality of life, and provider understanding of individuals at the end of life. However, this research involves many potential challenges. This review seeks to inform and assist researchers targeting to design studies targeting hospice and palliative care patients by presenting a thorough review of the published literature. This review covers English-language articles published from 1990 through 2009 listed in the PsycInfo, Medline, or CINAHL research databases under relevant keywords. Articles on pediatric hospice were not included. Issues discussed include study design, informed consent, and recruitment for participants. Synthesized recommendations for researchers in these populations are presented.

Publication types

  • Review

MeSH terms

  • Clinical Trials as Topic / ethics
  • Clinical Trials as Topic / methods*
  • Hospice Care*
  • Informed Consent / ethics
  • Palliative Care*
  • Patient Selection / ethics
  • Research Design*
  • Research Subjects
  • Time Factors