Secondary researchers' duties to return incidental findings and individual research results: a partial-entrustment account

Genet Med. 2012 Apr;14(4):467-72. doi: 10.1038/gim.2012.12. Epub 2012 Feb 23.


Existing attempts to explain why secondary researchers might have any obligation to return findings to the contributors of genetic samples falter because of the lack of any direct interaction between the secondary researchers and the contributors. The partial-entrustment account of these obligations defended here circumvents this problem by explaining how a chain of special responsibilities can be forged even in the absence of any direct interaction.Genet Med 2012:14(4):467-472.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Biomedical Research / ethics
  • Biomedical Research / methods
  • Biomedical Research / statistics & numerical data
  • Humans
  • Incidental Findings*
  • Medical Informatics / ethics
  • Medical Informatics / statistics & numerical data
  • Research Personnel / ethics*
  • Research Subjects*
  • Researcher-Subject Relations / ethics*
  • Truth Disclosure / ethics