Self-reported health, self-management, and the impact of living with inflammatory bowel disease during adolescence

J Pediatr Nurs. 2012 Jun;27(3):256-64. doi: 10.1016/j.pedn.2011.02.005. Epub 2011 Mar 30.


Perceptions of living with inflammatory bowel disease (IBD) during adolescence were explored in a cross-sectional study with a multimethod design. The adolescents as a group described general well-being and ability to handle the disease, which was related to their self-reported self-esteem. However, a subgroup of adolescents with a severe disease course reported a more negative view of the impact of IBD in their daily lives. Encouraging adolescents to communicate in different ways may help professionals to identify vulnerable subgroups with impaired health and to provide more appropriate support and treatment for those most in need.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Attitude to Health*
  • Cross-Sectional Studies
  • Diagnostic Self Evaluation
  • Female
  • Humans
  • Inflammatory Bowel Diseases / psychology*
  • Inflammatory Bowel Diseases / therapy
  • Male
  • Nursing Methodology Research
  • Qualitative Research
  • Quality of Life / psychology*
  • Self Care / psychology*
  • Self Concept
  • Self Report*
  • Severity of Illness Index