Internet-based social networking and its role in the evolution of chronic cerebrospinal venous insufficiency

Tech Vasc Interv Radiol. 2012 Jun;15(2):153-7. doi: 10.1053/j.tvir.2012.02.009.


The Internet is being seen as a growing resource for health-related information for a large number of patients. It is undeniable that its widespread presence has led to the growth of awareness that chronic cerebrospinal venous insufficiency (CCSVI) as an entity that may contribute to the symptoms experienced by patients with multiple sclerosis (MS). Social networking and file-sharing Web sites have brought patients with MS together from all over the world and have facilitated the distribution of personal experiences and information derived from medical research as it relates to CCSVI. As a result, there has been an accelerated growth in the number of patients seeking treatment for this syndrome in light of the possibility that it may improve their present condition. This article will review this phenomenon, the Internet-based resources available to MS patients seeking information about CCSVI, and the responsibilities of physicians as they participate in these online discussions.

MeSH terms

  • Cerebral Veins / surgery*
  • Chronic Disease
  • Humans
  • Information Dissemination / methods*
  • Internet
  • Patient Education as Topic / methods*
  • Social Support*
  • Spinal Cord / blood supply*
  • Venous Insufficiency*