Power to the people: a wiki-governance model for biobanks

Genome Biol. 2012 May 29;13(5):158. doi: 10.1186/gb-2012-13-5-158.

Abstract

Biobanks are adopting various modes of public engagement to close the agency gap between participants and biobank builders. We propose a wiki-governance model for biobanks that harnesses Web 2.0, and which gives citizens the ability to collaborate in biobank governance and policymaking.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Canada
  • Community Participation
  • Genomics / methods
  • Humans
  • Policy Making*
  • Public Opinion
  • Tissue Banks / ethics
  • Tissue Banks / legislation & jurisprudence
  • Tissue Banks / organization & administration*