Integrated personal health record use: association with parent-reported care experiences

Abstract

Objective: To examine integrated personal health record (PHR) use patterns among parents of children with chronic disease and compare ratings of care experiences between integrated PHR users and nonusers.

Methods: A survey was mailed to 600 randomly selected parents of children with chronic disease ≤ 5 years old and enrolled at Group Health for ≥ 1 year. Respondents reported integrated PHR use in the past 12 months, types of services used, or reasons for nonuse. We measured parent ratings of care experiences by using Consumer Assessments of Healthcare Providers and Systems (CAHPS) composite measures: Attention to Growth and Development, Attention to Safety and Health, Getting Care Quickly, Getting Needed Care, Prescription Medications, and Care Coordination. We used multivariate logistic regression to test the association between integrated PHR use and each CAHPS composite measure dichotomized by using the top box score method.

Results: Of 256 respondents (43% eligible response rate), 166 (65%) were integrated PHR users and 90 (35%) were nonusers. The top integrated PHR services used were viewing immunization records, viewing medical records, secured messaging, and scheduling appointments. The top reasons for not using the integrated PHR were "too busy," "forgot login/password," and "my child does not have health care needs." Adjusted logistic regression did not reveal any significant differences between users and nonusers.

Conclusions: Parents of children with chronic disease appear willing to use an integrated PHR to address health care needs for their child. Integrated PHR use was not associated with higher scores on CAHPS composite measures in this health plan.