Employer-sponsored health insurance coverage limitations: results from the Childhood Cancer Survivor Study

Support Care Cancer. 2013 Feb;21(2):377-83. doi: 10.1007/s00520-012-1523-7. Epub 2012 Jun 21.


Purpose: The Affordable Care Act (ACA) will expand health insurance options for cancer survivors in the USA. It is unclear how this legislation will affect their access to employer-sponsored health insurance (ESI). We describe the health insurance experiences for survivors of childhood cancer with and without ESI.

Methods: We conducted a series of qualitative interviews with 32 adult survivors from the Childhood Cancer Survivor Study to assess their employment-related concerns and decisions regarding health insurance coverage. Interviews were performed from August to December 2009 and were recorded, transcribed, and content analyzed using NVivo 8.

Results: Uninsured survivors described ongoing employment limitations, such as being employed at part-time capacity, which affected their access to ESI coverage. These survivors acknowledged they could not afford insurance without employer support. Survivors on ESI had previously been denied health insurance due to their preexisting health conditions until they obtained coverage through an employer. Survivors feared losing their ESI coverage, which created a disincentive to making career transitions. Others reported worries about insurance rescission if their cancer history was discovered. Survivors on ESI reported financial barriers in their ability to pay for health care.

Conclusions: Childhood cancer survivors face barriers to obtaining ESI. While ACA provisions may mitigate insurance barriers for cancer survivors, many will still face cost barriers to affording health care without employer support.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Child
  • Decision Making
  • Employment / economics
  • Employment / psychology
  • Employment / statistics & numerical data
  • Female
  • Health Benefit Plans, Employee / economics*
  • Health Benefit Plans, Employee / legislation & jurisprudence
  • Health Benefit Plans, Employee / trends
  • Health Services Accessibility / economics*
  • Health Services Accessibility / legislation & jurisprudence
  • Humans
  • Insurance Coverage / economics*
  • Insurance Coverage / legislation & jurisprudence
  • Insurance Coverage / trends
  • Male
  • Medically Uninsured / statistics & numerical data
  • Motivational Interviewing
  • Neoplasms / complications
  • Neoplasms / economics*
  • Patient Protection and Affordable Care Act / economics*
  • Patient Protection and Affordable Care Act / standards
  • Qualitative Research
  • Survivors / psychology
  • Survivors / statistics & numerical data
  • Unemployment / statistics & numerical data
  • United States