Development and validation of the Kilifi Epilepsy Beliefs and Attitude Scale

Epilepsy Behav. 2012 Aug;24(4):480-7. doi: 10.1016/j.yebeh.2012.06.001. Epub 2012 Jul 12.


Epilepsy remains misunderstood, particularly in resource poor countries (RPC). We developed and validated a tool to assess beliefs and attitudes about epilepsy among people with epilepsy (PWE) in Kilifi, Kenya. The 50-item scale was developed through a literature review and qualitative study findings, and its reliability and validity were assessed with 673 PWE. A final scale of 34 items had Cronbach's alpha scores for the five subscales: causes of epilepsy (α=0.71); biomedical treatment of epilepsy (α=0.70); cultural treatment of epilepsy (α=0.75); risk and safety concerns about epilepsy (α=0.56); and negative attitudes about epilepsy (α=0.76) and entire scale (α=0.70). Test-retest reliability was acceptable for all the subscales. The Kilifi Epilepsy Beliefs and Attitude Scale is a reliable and valid tool that measures beliefs and attitudes about epilepsy. It may be useful in other RPC or as a tool to assess the effectiveness of interventions to improve knowledge, beliefs, and attitudes about epilepsy.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Attitude*
  • Child
  • Child, Preschool
  • Culture*
  • Epilepsy / epidemiology*
  • Epilepsy / psychology*
  • Factor Analysis, Statistical
  • Female
  • Health Surveys
  • Humans
  • Infant
  • Kenya / epidemiology
  • Male
  • Psychometrics
  • Reproducibility of Results
  • Surveys and Questionnaires
  • Young Adult