Design and process evaluation of an informative website tailored to breast cancer survivors' and intimate partners' post-treatment care needs

BMC Res Notes. 2012 Oct 3:5:548. doi: 10.1186/1756-0500-5-548.

Abstract

Background: On-line provision of information during the transition phase after treatment carries great promise in meeting shortcomings in post-treatment care for breast cancer survivors and their partners. The objectives of this study are to describe the development and process evaluation of a tailored informative website and to assess which characteristics of survivors and partners, participating in the feasibility study, are related to visiting the website.

Methods: The development process included quantitative and qualitative assessments of survivors' and partners' care needs and preferences. Participants' use and evaluation of the website were explored by conducting baseline and post-measurements. During the intervening 10-12 weeks 57 survivors and 28 partners were granted access to the website.

Results: Fifty-seven percent (n=21) of survivors who took part in the post-measurement indicated that they had visited the website. Compared to non-visitors (n=16), they were more likely to have a partner and a higher income, reported higher levels of self-esteem and had completed treatment for a longer period of time. Partners who consulted the on-line information (42%, n=8) were younger and reported lower levels of social support compared to partners who did not visit the website (n=11). Visitors generally evaluated the content and lay-out positively, yet some believed the information was incomplete and impersonal.

Conclusions: The website reached only about half of survivors and partners, yet was mostly well-received. Besides other ways of providing information and support, a website containing clear-cut and tailored information could be a useful tool in post-treatment care provision.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Breast Neoplasms / rehabilitation*
  • Female
  • Health Services Needs and Demand*
  • Humans
  • Internet
  • Interpersonal Relations
  • Male
  • Middle Aged
  • Needs Assessment
  • Quality of Life
  • Sexual Partners / psychology*
  • Social Support*
  • Software Design*
  • Surveys and Questionnaires
  • Survivors / psychology*