Research results: preserving newborn blood samples

Sci Transl Med. 2012 Nov 7;4(159):159cm12. doi: 10.1126/scitranslmed.3004474.


Retention and use, without explicit parental permission, of residual dried blood samples from newborn screening has generated public controversy over concerns about violations of family privacy rights and loss of parental autonomy. The public debate about this issue has included little discussion about the destruction of a potentially valuable public resource that can be used for research that may yield improvements in public health. The research community must advocate for policies and infrastructure that promote retention of residual dried blood samples and their use in biomedical research.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Biomedical Research* / legislation & jurisprudence
  • Blood Preservation*
  • Blood Specimen Collection*
  • Humans
  • Infant, Newborn
  • Legislation as Topic
  • Neonatal Screening / legislation & jurisprudence
  • Public Health / legislation & jurisprudence