To share or not to share: that is not the question
- PMID: 23253606
- DOI: 10.1126/scitranslmed.3004454
To share or not to share: that is not the question
Abstract
There is an increasing awareness of the power of integrating multiple sources of data to accelerate biomedical discoveries. Some even argue that it is unethical not to share data that could be used for the public good. However, the challenges involved in sharing clinical and biomedical data are seldom discussed. I briefly review some of these challenges and provide an overview of how they are being addressed by the scientific community.
Similar articles
-
The limits of sharing: an ethical analysis of the arguments for and against the sharing of databases and material banks.Account Res. 2011 Nov;18(6):357-81. doi: 10.1080/08989621.2011.609443. Account Res. 2011. PMID: 22011067
-
Interactions of the public and private sectors in drug development: boundaries to protect scientific values while preserving innovation.Cleve Clin J Med. 2007 Mar;74 Suppl 2:S45-8; discussion S51-9. doi: 10.3949/ccjm.74.suppl_2.s45. Cleve Clin J Med. 2007. PMID: 17469473
-
Acting neighborly. Rural hospitals share resources to advance use of IT.Mod Healthc. 2006 Apr 17;36(16-17):28, 30. Mod Healthc. 2006. PMID: 16673672 No abstract available.
-
Teaching Public Health Networks in England: an innovative approach to building public health capacity and capability.Public Health. 2009 Dec;123(12):800-4. doi: 10.1016/j.puhe.2009.10.008. Epub 2009 Nov 14. Public Health. 2009. PMID: 19914668 Review.
-
Knowledge that matters: integrating research, practice, and education.Commun Nurs Res. 2008 Spring;41:3-10. Commun Nurs Res. 2008. PMID: 18822667 Review. No abstract available.
Cited by
-
Biases in bioethics: a narrative review.BMC Med Ethics. 2023 Mar 6;24(1):17. doi: 10.1186/s12910-023-00894-0. BMC Med Ethics. 2023. PMID: 36879251 Free PMC article. Review.
-
Why Is the Electronic Health Record So Challenging for Research and Clinical Care?Methods Inf Med. 2021 May;60(1-02):32-48. doi: 10.1055/s-0041-1731784. Epub 2021 Jul 19. Methods Inf Med. 2021. PMID: 34282602 Free PMC article.
-
The anatomy of a distributed predictive modeling framework: online learning, blockchain network, and consensus algorithm.JAMIA Open. 2020 Jul 6;3(2):201-208. doi: 10.1093/jamiaopen/ooaa017. eCollection 2020 Jul. JAMIA Open. 2020. PMID: 32734160 Free PMC article.
-
Implementation of data access and use procedures in clinical data warehouses. A systematic review of literature and publicly available policies.BMC Med Inform Decis Mak. 2020 Jul 11;20(1):157. doi: 10.1186/s12911-020-01177-z. BMC Med Inform Decis Mak. 2020. PMID: 32652989 Free PMC article.
-
EXpectation Propagation LOgistic REgRession on permissioned blockCHAIN (ExplorerChain): decentralized online healthcare/genomics predictive model learning.J Am Med Inform Assoc. 2020 May 1;27(5):747-756. doi: 10.1093/jamia/ocaa023. J Am Med Inform Assoc. 2020. PMID: 32364235 Free PMC article.
Publication types
MeSH terms
Grants and funding
LinkOut - more resources
Full Text Sources
