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, 6 (2), 88-93

Public Participation In, and Awareness About, Medical Research Opportunities in the Era of Clinical and Translational Research

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Public Participation In, and Awareness About, Medical Research Opportunities in the Era of Clinical and Translational Research

Matthew M Davis et al. Clin Transl Sci.

Abstract

Context: In the United States, levels of public participation in medical research in the era of Clinical and Translational Science Awards (CTSAs) are unknown.

Methods: In 2011, a household survey was administered to a sample of U.S. adults, asking whether they (and children <18 years old) had participated, or were aware of opportunities to participate, in medical research. Respondents living within 100 miles of CTSA sites were identified. Regression analyses of participation and awareness (PA) were performed, applying sampling weights to permit nationally representative inferences.

Results: Overall, 2,150 individuals responded (completion rate = 60%); 65% of adults and 63% of families with children resided within 100 miles of ≥1 CTSA location. Research participation rates were 11% among adults and 5% among children. Among nonparticipants, awareness rates were 64% among adults and 12% among parents of children. PA among adults was associated with higher income and education, older age, presence of chronic conditions, and living within 100 miles of four specific CTSA locations. For children, PA was associated with higher household income and parents' chronic health conditions.

Conclusions: PA of medical research opportunities is substantially higher for adults than children. Higher PA levels near specific CTSAs merit investigation to identify their successful approaches.

Figures

Figure 1
Figure 1
Proportion of adults in sample living in proximity (≤100 miles) to CTSA sites who report prior participation in, or awareness of, opportunities for medical research. The letter “m” after a CTSA designation indicates a metro CTSA of ≥2 CTSA sites; see Methods for details.
Figure 2
Figure 2
Proportion of households with children living in proximity (≤100 miles) to CTSA sites who report prior participation in, or awareness of, opportunities for medical research. The letter “m” after a CTSA designation indicates a metro CTSA of ≥2 CTSA sites; see Methods for details. CTSA labels in this figure are consistent with labels in Figure 1, to facilitate comparisons.

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