Prevalence and patterns of retention in cardiac care in young adults with congenital heart disease

J Pediatr. 2013 Sep;163(3):902-4.e1. doi: 10.1016/j.jpeds.2013.04.012. Epub 2013 May 16.


The population with adult congenital heart disease is expanding. Cardiac care retention and follow-up patterns were assessed in 153 adults with congenital heart disease (median age, 24.5 years), previously compliant as teenagers. The majority (125; 81.7%) were retained in care, most often by a pediatric cardiologist (69%). The rate of retention was surprisingly high.

Keywords: CHD; Congenital heart disease.

Publication types

  • Evaluation Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Cardiology
  • Female
  • Follow-Up Studies
  • Health Care Surveys
  • Heart Defects, Congenital / therapy*
  • Humans
  • Male
  • Ohio
  • Patient Acceptance of Health Care / statistics & numerical data*
  • Retrospective Studies
  • Transition to Adult Care / statistics & numerical data*
  • Young Adult