Project Access: Strategies to improve care for children and youth with epilepsy: illustrations of recommendations in the IOM report on the epilepsies

Epilepsy Behav. 2013 Oct;29(1):121-7. doi: 10.1016/j.yebeh.2013.06.036. Epub 2013 Aug 10.


Project Access (PA), funded by the Maternal and Child Health Bureau (MCHB) of the Health Resources and Services Administration (HRSA), provided grants to state and local agencies to improve awareness, provide education, design, test, pilot and evaluate system changes, and improve quality of services and access to early diagnosis and comprehensive, coordinated health care and related services for children and youth with epilepsy residing in rural and medically underserved areas. In 2011, the Institute of Medicine of the National Academies (IOM) published a series of 13 recommendations addressing unmet psychosocial, medical, and public health needs of individuals with epilepsy, including children and youth. This paper examines the synergy between these two projects showing how the strategies utilized in the PA demonstration projects can address the IOM recommendations and how these recommendations can inform future initiatives for improving care for children and youth with epilepsy.

Keywords: Access to care; Institute of Medicine; Pediatric epilepsy; Project Access; Psychosocial, medical, and public health needs; Telehealth.

Publication types

  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adolescent
  • Child
  • Epilepsy / epidemiology
  • Epilepsy / therapy*
  • Female
  • Health Promotion / methods*
  • Health Services Needs and Demand*
  • Humans
  • Male
  • National Academies of Science, Engineering, and Medicine, U.S., Health and Medicine Division*
  • Quality Improvement
  • United States / epidemiology
  • Young Adult