Contact with primary care: the experience of people with intellectual disabilities

J Appl Res Intellect Disabil. 2014 May;27(3):200-11. doi: 10.1111/jar.12072. Epub 2013 Sep 13.


Background: People with intellectual disabilities experience disparities in their health and health care. Annual health checks are intended to counter such disparity by improving access to primary health care. However, little is known about their experience of having a health check or other types of contact with primary care services.

Materials and methods: The findings of two studies which used focus groups were combined. 102 people with intellectual disabilities participated in the focus groups.

Results: Participants' experiences of primary care services generally, and health checks in particular, were positive. However, unanimity was rare on any of the topics discussed and a number of areas of dissatisfaction emerged.

Conclusions: Further studies with larger and more representative samples are necessary as feedback from people with intellectual disabilities about their experience of contact with primary care staff might help to enhance GP knowledge about their health requirements.

Keywords: GPs; health; health checks; intellectual disabilities; primary care; user views.

MeSH terms

  • Adult
  • Consumer Behavior
  • Focus Groups
  • General Practice / standards*
  • Humans
  • Intellectual Disability / rehabilitation*
  • Primary Health Care / standards*
  • Professional-Patient Relations
  • Wales