A patient-focused framework integrating self-management and informatics

J Nurs Scholarsh. 2014 Mar;46(2):91-7. doi: 10.1111/jnu.12059. Epub 2013 Dec 19.


Purpose: This article introduces a framework to (a) guide chronic illness self-management interventions through the integration of self-management and nursing informatics, (b) focus self-management research, and (c) promote ethical, patient-empowering technology use by practicing nurses.

Methods: Existing theory and research focusing on chronic illness, self-management, health-enabling technology, and nursing informatics were reviewed and examined and key concepts were identified. A care paradigm focusing on concordance, rather than compliance, served as the overall guiding principle.

Findings: This framework identifies key relationships among self-management (patient behaviors), health force (patient characteristics), and patient-defined goals. The role of health-enabling technology supporting these relationships is explored in the context of nursing informatics.

Conclusions: The Empowerment Informatics framework can guide intervention design and evaluation and support practicing nurses' ethical use of technology as part of self-management support.

Clinical relevance: Nurses worldwide provide support to patients who are living with chronic illnesses. As pressures related to cost and access to care increase, technology-enabled self-management interventions will become increasingly common. This patient-focused framework can guide nursing practice using technology that prioritizes patient needs.

Keywords: Chronic illness; chronic disease; framework; informatics; patient-focused; self-management; technology; theory.

MeSH terms

  • Chronic Disease / nursing*
  • Humans
  • Nursing Informatics*
  • Nursing Methodology Research
  • Patient-Centered Care / methods*
  • Self Care / methods*