Predictive genetic testing of children and the role of the best interest standard

J Law Med Ethics. 2013 Winter;41(4):899-906, Table of Contents. doi: 10.1111/jlme.12099.


The "best interest standard" is the guidance principle for pediatric healthcare in the United States (US) and the United Kingdom (UK). In the UK, the best interest standard may also be used as an intervention principle when parents make good but non-ideal decisions whereas intervention in the US requires a determination of abuse or neglect. I examine whether and how the different uses of the best interest standard influence predictive genetic testing of children.

MeSH terms

  • Child
  • Decision Making
  • Genetic Testing / ethics*
  • Genetic Testing / legislation & jurisprudence
  • Humans
  • Parents*
  • Practice Guidelines as Topic
  • United Kingdom
  • United States