A shared e-decision support portal for pediatric asthma

J Ambul Care Manage. Apr-Jun 2014;37(2):120-6. doi: 10.1097/JAC.0000000000000025.

Abstract

We describe the user-centered development of an electronic medical record-based portal, "MyAsthma," designed to facilitate shared decision making in pediatric asthma. Interviews and focus groups with 7 parents of children with asthma and 51 clinical team members elicited 2 overarching requirements: that the portal should support sustained communication and ensure patient safety. Parents and clinicians prioritized features including collecting parent and child concerns and goals; symptom, side effect, and medication adherence tracking with decision support; and accessible educational materials. Iterative usability testing refined the system. MyAsthma provides a model for using technology to foster shared decision making in ambulatory care settings.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, Non-P.H.S.
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adult
  • Asthma / therapy*
  • Child
  • Child, Preschool
  • Communication
  • Decision Making
  • Decision Support Systems, Clinical*
  • Electronic Health Records*
  • Humans
  • Patient Participation*
  • Patient Safety
  • Pennsylvania