Identifiability and privacy in pluripotent stem cell research

Cell Stem Cell. 2014 Apr 3;14(4):427-30. doi: 10.1016/j.stem.2014.03.014.


Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Humans
  • Pluripotent Stem Cells / cytology*
  • Privacy*
  • Stem Cell Research / ethics*
  • Stem Cell Research / legislation & jurisprudence