Publishing data from electronic health records while preserving privacy: a survey of algorithms

J Biomed Inform. 2014 Aug:50:4-19. doi: 10.1016/j.jbi.2014.06.002. Epub 2014 Jun 14.

Abstract

The dissemination of Electronic Health Records (EHRs) can be highly beneficial for a range of medical studies, spanning from clinical trials to epidemic control studies, but it must be performed in a way that preserves patients' privacy. This is not straightforward, because the disseminated data need to be protected against several privacy threats, while remaining useful for subsequent analysis tasks. In this work, we present a survey of algorithms that have been proposed for publishing structured patient data, in a privacy-preserving way. We review more than 45 algorithms, derive insights on their operation, and highlight their advantages and disadvantages. We also provide a discussion of some promising directions for future research in this area.

Keywords: Algorithms; Anonymization; Electronic health records; Privacy; Survey.

Publication types

  • Research Support, Non-U.S. Gov't
  • Review

MeSH terms

  • Algorithms*
  • Electronic Health Records*
  • Privacy*
  • Truth Disclosure