Development of the Assessment of Burden of COPD tool: an integrated tool to measure the burden of COPD

NPJ Prim Care Respir Med. 2014 Jul 10:24:14021. doi: 10.1038/npjpcrm.2014.21.


In deciding on the treatment plan for patients with chronic obstructive pulmonary disease (COPD), the burden of COPD as experienced by patients should be the core focus. It is therefore important for daily practice to develop a tool that can both assess the burden of COPD and facilitate communication with patients in clinical practice. This paper describes the development of an integrated tool to assess the burden of COPD in daily practice. A definition of the burden of COPD was formulated by a Dutch expert team. Interviews showed that patients and health-care providers agreed on this definition. We found no existing instruments that fully measured burden of disease according to this definition. However, the Clinical COPD Questionnaire meets most requirements, and was therefore used and adapted. The adapted questionnaire is called the Assessment of Burden of COPD (ABC) scale. In addition, the ABC tool was developed, of which the ABC scale is the core part. The ABC tool is a computer program with an algorithm that visualises outcomes and provides treatment advice. The next step in the development of the tool is to test the validity and effectiveness of both the ABC scale and tool in daily practice.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Cost of Illness
  • Focus Groups
  • Humans
  • Interviews as Topic
  • Pulmonary Disease, Chronic Obstructive / diagnosis*
  • Reproducibility of Results
  • Severity of Illness Index
  • Surveys and Questionnaires
  • Visual Analog Scale