The renal patient support group: supporting patients with chronic kidney disease through social media

J Ren Care. 2014 Sep;40(3):216-8. doi: 10.1111/jorc.12076. Epub 2014 Jul 28.

Abstract

Background: The Renal Patient Support Group (RPSG) is a voluntary Facebook group that was developed in 2009 in the UK. The RPSG now has in excess of 5000 members.

Objective: To highlight the work of the RPSG and to describe how the use of social media has helped raise awareness of chronic kidney disease (CKD). The RPSG offers online peer support internationally, with members sharing their experiences.

Methods: Since the RPSG is mainly a Facebook platform, this medium has lent itself to raising CKD awareness, also allowing group members to share real-life stories.

Conclusion: The RPSG continues to expand and invites health professionals to gain opportunities provided by social media networks to improve the health of their patients by facilitating and getting involved in 'real' discussions.

Keywords: Chronic kidney disease; Facebook; Patient involvement; Social media.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adaptation, Psychological*
  • Awareness
  • Humans
  • Internationality
  • Kidney Failure, Chronic / nursing*
  • Kidney Failure, Chronic / psychology*
  • Minority Groups / psychology
  • Renal Dialysis / nursing
  • Renal Dialysis / psychology
  • Self-Help Groups*
  • Social Media*
  • Tissue and Organ Procurement