Palliative Care Issues in Amyotrophic Lateral Sclerosis: An Evidenced-Based Review

Am J Hosp Palliat Care. 2016 Feb;33(1):84-92. doi: 10.1177/1049909114548719. Epub 2014 Sep 8.


As palliative care physicians become increasingly involved in the care of patients with amyotrophic lateral sclerosis (ALS), they will be asked to provide guidance regarding the use of supplements, diet, exercise, and other common preventive medicine interventions. Moreover, palliative care physicians have a crucial role assisting patients with ALS in addressing health care decisions to maximize quality of life and cope with a rapidly disabling disease. It is therefore important for palliative care physicians to be familiar with commonly encountered palliative care issues in ALS. This article provides an evidenced-based review of palliative care options not usually addressed in national and international ALS guidelines.

Keywords: alternative medicine; amyotrophic lateral sclerosis; hospice; palliative care; quality of life.

Publication types

  • Review

MeSH terms

  • Amyotrophic Lateral Sclerosis / nursing*
  • Caregivers
  • Home Care Services, Hospital-Based / organization & administration*
  • Humans
  • Palliative Care / standards*
  • Patient Care Team / organization & administration*
  • Quality of Life*
  • Terminal Care / organization & administration*