Palliative care in neonatal intensive care, effects on parent stress and satisfaction: a feasibility study

Am J Hosp Palliat Care. 2015 Dec;32(8):869-75. doi: 10.1177/1049909114551014. Epub 2014 Sep 16.

Abstract

Context: Approximately 1 in 10 infants require neonatal intensive care unit (NICU) hospitalization, which causes parental stress. Palliative care (PC) provides an opportunity to alleviate suffering and stress.

Objectives: This study examines the effects of PC on NICU parent stress and satisfaction.

Methods: A prospective cohort design compares stress and satisfaction among families receiving or not receiving PC.

Results: No significant differences in stress scores were found (P = .27-1.00). Palliative care parents (100%) were more likely to report being "extremely satisfied" with care than usual-care parents (50%).

Conclusion: This study supports the feasibility of evaluating NICU PC services. Infants referred for PC typically have higher morbidity/mortality; therefore, higher parental stress scores may be expected. Stress levels were similar in both cohorts, thus PC did not increase stress and may decrease PC parent stress.

Keywords: infant; neonatal intensive care unit; palliative care; parent; premature; satisfaction; stress.

MeSH terms

  • Adolescent
  • Adult
  • Feasibility Studies
  • Female
  • Humans
  • Infant
  • Infant, Newborn
  • Intensive Care, Neonatal / methods*
  • Male
  • Palliative Care / methods*
  • Parents / psychology*
  • Personal Satisfaction*
  • Prospective Studies
  • Young Adult