Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of cystic fibrosis mental health care delivery

J Cyst Fibros. 2015 Jul;14(4):533-9. doi: 10.1016/j.jcf.2014.12.015. Epub 2015 Jan 12.


Background: Psychological morbidity in individuals with cystic fibrosis (CF) and their caregivers is common. The Cystic Fibrosis Foundation (CFF) and European Cystic Fibrosis Society (ECFS) Guidelines Committee on Mental Health sought the views of CF health care professionals concerning mental health care delivery.

Methods: An online survey which focused on the current provision and barriers to mental health care was distributed to CF health care professionals.

Results: Of the 1454 respondents, many did not have a colleague trained in mental health issues and 20% had no one on their team whose primary role was focused on assessing or treating these issues. Insufficient resources and a lack of competency were reported in relation to mental health referrals. Seventy-three percent of respondents had no experience with mental health screening. Of those who did, they utilized 48 different, validated scales.

Conclusions: These data have informed the decision-making, dissemination and implementation strategies of the Mental Health Guidelines Committee sponsored by the CFF and ECFS.

Keywords: Anxiety; Depression; Screening.

MeSH terms

  • Attitude of Health Personnel*
  • Cystic Fibrosis / psychology*
  • Cystic Fibrosis / therapy*
  • Health Services Accessibility / organization & administration*
  • Humans
  • Mental Health Services / organization & administration*
  • Surveys and Questionnaires
  • United Kingdom
  • United States