Background: Our goal was to provide data on the economic burden and health-related quality of life (HRQoL) associated with cystic fibrosis (CF) in France.
Methods: A retrospective cross-sectional study was carried out on adults and children with CF, who completed an anonymous questionnaire regarding their socio-demographic characteristics, healthcare consumption and presence of a carer. Costs were calculated with a bottom-up approach, and HRQoL was assessed using EQ-5D.
Results: 82 adults and 158 children were included. The total average annual cost of CF was €29,746 per patient. Total costs were higher in adults than in children and increased with disease duration. The average utility was lower in adults (0.667 vs. 0.783 in children, p=0.0015). The HRQoL of carers was also affected (0.742 and 0.765 for carers of adults and children with CF, respectively).
Conclusions: Our study highlights the burden of CF in terms of costs and decreased HRQoL for both patients and carers.
Keywords: Costs and cost analysis; Cystic fibrosis; Economic burden; Health-related quality of life.
Copyright © 2014 European Cystic Fibrosis Society. Published by Elsevier B.V. All rights reserved.