When Should Genome Researchers Disclose Misattributed Parentage?

Hastings Cent Rep. Jul-Aug 2015;45(4):28-36. doi: 10.1002/hast.452. Epub 2015 Feb 11.

Abstract

Researchers need a decision-making framework about disclosing a finding of misattributed parentage that accounts for nonclinical factors like the effects of personal identity and familial relationships.

MeSH terms

  • Beneficence*
  • Decision Making
  • Ethical Theory
  • Ethics, Medical
  • Ethics, Research
  • Family* / psychology
  • Genetic Diseases, Inborn / diagnosis
  • Genetic Diseases, Inborn / prevention & control
  • Genetic Research* / ethics
  • Humans
  • Informed Consent / ethics*
  • Informed Consent / standards
  • Paternity*
  • Personal Autonomy
  • Reproduction
  • Research Personnel / ethics
  • Researcher-Subject Relations / ethics*
  • Social Identification*
  • Stress, Psychological / etiology
  • Stress, Psychological / prevention & control
  • Trust*
  • Truth Disclosure / ethics*