Objective: Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion.
Methods: A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment.
Results: Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided.
Conclusion: This survey showed that reimbursement rates were well below the costs of enrollment.
Keywords: JUVENILE RHEUMATOID DISEASES; REGISTRIES; SURVEY; TRIAL COSTS.