The cost of research: a survey of participating sites in a nationwide registry

J Rheumatol. 2015 Apr;42(4):702-5. doi: 10.3899/jrheum.141122. Epub 2015 Feb 15.

Abstract

Objective: Much attention has been placed upon decreasing costs of clinical research. However, little has been studied about the effects on research completion.

Methods: A survey was sent to all registry investigators and coordinators to determine the cost of enrollment in a national registry, whether sites had to supplement using their own funds, and whether the cost affected enrollment.

Results: Results indicate that a majority of sites supplemented enrollment with their own funding (88%) and diagnoses requiring a lot of time to enroll were avoided.

Conclusion: This survey showed that reimbursement rates were well below the costs of enrollment.

Keywords: JUVENILE RHEUMATOID DISEASES; REGISTRIES; SURVEY; TRIAL COSTS.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Biomedical Research / economics*
  • Humans
  • Registries
  • Rheumatology / economics*
  • Surveys and Questionnaires