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Review
. 2015 Sep;62(9):1495-500.
doi: 10.1002/pbc.25506. Epub 2015 Mar 21.

Use of patient registries and administrative datasets for the study of pediatric cancer

Henry E Rice  1   2 , Brian R Englum  1 , Brian C Gulack  1 , Obinna O Adibe  1   2 , Elizabeth T Tracy  1   2 , Susan G Kreissman  2 , Jonathan C Routh  1   2
Affiliations
Review

Use of patient registries and administrative datasets for the study of pediatric cancer

Henry E Rice et al. Pediatr Blood Cancer. 2015 Sep.

Abstract

Analysis of data from large administrative databases and patient registries is increasingly being used to study childhood cancer care, although the value of these data sources remains unclear to many clinicians. Interpretation of large databases requires a thorough understanding of how the dataset was designed, how data were collected, and how to assess data quality. This review will detail the role of administrative databases and registry databases for the study of childhood cancer, tools to maximize information from these datasets, and recommendations to improve the use of these databases for the study of pediatric oncology.

Keywords: administrative dataset; patient registry; pediatric cancer; secondary analysis.

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Conflict of interest statement

Conflict of interest: Nothing to declare.

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