Enhancing caregivers' understanding of dementia and tailoring activities in frontotemporal dementia: two case studies

Disabil Rehabil. 2016;38(7):704-14. doi: 10.3109/09638288.2015.1055375. Epub 2015 Jun 9.

Abstract

Purpose: The purpose of this study is to describe the intervention process and results of the Tailored Activities Program (TAP) in two people diagnosed with Frontotemporal Dementia (FTD).

Method: TAP is an occupational therapy (OT) community-based intervention program that prescribes personalised activities to reduce difficult behaviours of dementia. The OT works with carers over a 4-month period (assessment, activity prescription and generalisation of strategies). Study measures were collected (blind researcher) pre- and post-intervention: cognition, functional disability, behavioural symptoms and Caregiver Confidence and Vigilance.

Results: A 51-year-old woman with behavioural-variant FTD could consistently engage in more activities post-intervention, with scores indicating improvements to behaviour, function and caregiver confidence. A 63-year-old man with semantic variant FTD engaged well in the prescribed activities, with scores reflecting reduced carer distress regarding challenging behaviours and improved caregiver vigilance.

Conclusions: TAP is efficacious in FTD, allowing for differences in approach for FTD subtype, where behavioural symptoms are very severe and pervasive.

Implications for rehabilitation: The Tailored Activities Program is an intervention which can be tailored to account for unique behavioural and language profiles inherent across frontotemporal dementia (FTD) subtypes. Maintaining a flexible approach when applying an intervention in FTD allows for tailoring to individual case variability within FTD subtypes.

Keywords: Caregivers; Tailored Activities Program; dementia; frontotemporal dementia; non-pharmacological intervention; occupational therapy.

Publication types

  • Case Reports
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Behavioral Symptoms / diagnosis*
  • Caregivers / psychology*
  • Cognition
  • Female
  • Frontotemporal Dementia / rehabilitation*
  • Humans
  • Male
  • Middle Aged
  • Neuropsychological Tests
  • Occupational Therapy / standards*
  • Psychiatric Status Rating Scales
  • Quality of Life
  • Randomized Controlled Trials as Topic
  • Severity of Illness Index
  • Treatment Outcome