Development of a Primary Care-Based Clinic to Support Adults With a History of Childhood Cancer: The Tactic Clinic

J Pediatr Nurs. Sep-Oct 2015;30(5):724-31. doi: 10.1016/j.pedn.2015.05.023. Epub 2015 Aug 13.

Abstract

Purpose: Describe the development and evolution of a primary-care-based, multidisciplinary clinic to support the ongoing care of adult survivors of childhood cancer.

Methods: A consultative clinic for adult survivors of childhood cancer has been developed that is located in an adult, academic internal medicine setting and is based on a long-term follow-up clinic model available at Children's Hospital Colorado.

Results: The clinic opened in July 2008. One hundred thirty-five patients have been seen as of April 2014. Referrals and clinic capacity have gradually increased over time, and a template has been developed in the electronic medical record to help facilitate completion of individualized care plan letters.

Conclusions: A primary care-based, multidisciplinary consultative clinic for adults with a history of childhood cancer survivor is feasible and actively engages adult primary care resources to provide risk-based care for long-term pediatric cancer survivors. This model of care planning can help support adult survivors of pediatric cancer and their primary care providers in non-academic, community settings as well.

Keywords: Chronic disease management; Pediatric cancer survivorship; Pediatric to adult care transition; Primary care; Survivorship care planning.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Ambulatory Care Facilities / organization & administration*
  • Child
  • Child, Preschool
  • Chronic Disease / therapy
  • Colorado
  • Disease Management
  • Female
  • Health Planning / organization & administration*
  • Humans
  • Interdisciplinary Communication
  • Male
  • Neoplasms / diagnosis
  • Neoplasms / therapy*
  • Organizational Innovation
  • Outcome Assessment, Health Care
  • Primary Health Care / organization & administration*
  • Program Development
  • Program Evaluation
  • Survivors
  • Transition to Adult Care / organization & administration*
  • Young Adult