Needs and Supports of People with Intellectual Disability and Their Families in Catalonia

J Appl Res Intellect Disabil. 2017 Jan;30(1):33-46. doi: 10.1111/jar.12215. Epub 2015 Sep 30.

Abstract

Background: The study assesses the support needs of individuals with intellectual disability and their families in Catalonia. The present authors examine family quality of life (FQoL), identify the individual services required and assess families' perceptions of the extent to which their family member with intellectual disability and they themselves receive the services they need.

Materials and methods: The N&S questionnaire (Needs and Supports for people with intellectual disability and their families) was administered to 2160 families with a family member with intellectual disability aged under 70 in Catalonia (Spain).

Results: Overall mean FQoL was quite high. FQoL was associated with family income, education, employment and percentage level of disability. Neither people with intellectual disability nor their families receive the specific support they need.

Conclusions: Besides providing specific support for individuals with intellectual disability, local policymakers and practitioners should apply a family-centred approach to the provision of support for families in order to improve FQoL.

Keywords: families' needs; family quality of Life; family support; needs of people with intellectual disability; support for people with intellectual disability.

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Family*
  • Female
  • Health Services Needs and Demand / statistics & numerical data*
  • Humans
  • Intellectual Disability / therapy*
  • Male
  • Middle Aged
  • Quality of Life*
  • Social Support*
  • Spain
  • Young Adult