Evaluation of the use of a parent questionnaire to provide later health status data: the PANDA study

Arch Dis Child Fetal Neonatal Ed. 2016 Jul;101(4):F304-8. doi: 10.1136/archdischild-2015-309247. Epub 2015 Oct 12.


Background: Routine comparable outcome data collection relating to the later health status of babies born very preterm has long been considered important, but has not been achieved in the UK.

Aim: To test the potential for a parental questionnaire to provide these data for all eligible babies from a geographical population.

Methods: Consent for follow-up by questionnaire (using the Parent Report of Children's Abilities-Revised combined with questions derived from the Oxford minimum dataset) was sought for all babies ≤30 weeks of gestation, discharged from a hospital in the East Midlands and Yorkshire regions of the UK, having been born between 1 January 2007 and 31 December 2011.

Results: The rate of consent to participate in follow-up showed a steady increase over time to 83.1% in 2011. However, the response rate in terms of completion and return of the questionnaire at 2 years, as a proportion of those eligible, showed little change over time, varying between 42% and 46%. Among those children where a questionnaire was returned, the rate of disability was broadly consistent over time: lowest in 2009, 21.0% (95% CI 16.8% to 25.6%) and highest in 2011, 25.5% (95% CI 21.5% to 31.2%). The instruments used appeared effective with the capability of discriminating between children with physical and/or cognitive disability.

Conclusions: The overall response rate in terms of returned questionnaires was disappointing and inadequate to recommend for implementation. It is possible that response rates would have been higher had clinical follow-up been linked to the data obtained from the questionnaires rather than running as a parallel process.

Keywords: Neonatology; Outcomes research.

Publication types

  • Evaluation Study

MeSH terms

  • Adult
  • Consumer Behavior / statistics & numerical data
  • Developmental Disabilities / diagnosis*
  • Female
  • Follow-Up Studies
  • Health Status Disparities
  • Humans
  • Infant
  • Infant, Extremely Premature / growth & development
  • Infant, Newborn
  • Male
  • Parents / psychology*
  • Prognosis
  • Surveys and Questionnaires
  • United Kingdom