Canadian Research Ethics Board Leadership Attitudes to the Return of Genetic Research Results to Individuals and Their Families

J Law Med Ethics. Fall 2015;43(3):514-22. doi: 10.1111/jlme.12293.

Abstract

Genomic research may uncover results that have direct actionable benefit to the individual. An emerging debate is the degree to which researchers may have responsibility to offer results to the biological relatives of the research participant. In a companion study to one carried out in the United States, we describe the attitudes of Canadian Research Ethics Board (REB) chairs to this issue and their opinions as to the role of the REB in developing related policy.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Attitude*
  • Canada
  • Disclosure / ethics*
  • Ethics Committees, Research / organization & administration*
  • Family*
  • Genetic Research / ethics*
  • Humans
  • Leadership*
  • Research Subjects*
  • Surveys and Questionnaires