How Much Control Do Children and Adolescents Have over Genomic Testing, Parental Access to Their Results, and Parental Communication of Those Results to Others?

J Law Med Ethics. Fall 2015;43(3):538-44. doi: 10.1111/jlme.12296.

Abstract

Adolescents may often have opinions about whether they want genetic and genomic testing in both the clinic and research and about who should have access to the results. This legal analysis demonstrates that the law provides very little protection to minors' wishes.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Access to Information / ethics
  • Access to Information / legislation & jurisprudence*
  • Adolescent
  • Adult
  • Child
  • Communication*
  • Death
  • Disclosure / ethics
  • Disclosure / legislation & jurisprudence*
  • Genetic Testing / ethics
  • Genetic Testing / legislation & jurisprudence*
  • Genomics / ethics
  • Genomics / legislation & jurisprudence*
  • Humans
  • Minors / legislation & jurisprudence*
  • Parents*
  • Patient Rights / ethics
  • Patient Rights / legislation & jurisprudence*
  • Refusal to Participate / ethics
  • Refusal to Participate / legislation & jurisprudence