A Family-Centered Model for Sharing Genetic Risk

J Law Med Ethics. Fall 2015;43(3):545-51. doi: 10.1111/jlme.12297.


The successes of the Human Genome Project have ushered in a new era of genomic science. To effectively translate these discoveries, it will be critical to improve the communication of genetic risk within families. This will require a systematic approach that accounts for the nature of family relationships and sociocultural beliefs. This paper proposes the application of the Family Systems Illness Model, used in the setting of cancer care, to the evolving field of genomics.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Communication*
  • Disclosure / ethics*
  • Family Health
  • Family*
  • Genetic Predisposition to Disease*
  • Humans
  • Neoplasms / diagnosis
  • Neoplasms / genetics*
  • Time Factors