Considerations for Returning Research Results to Culturally Diverse Participants and Families of Decedents

J Law Med Ethics. Fall 2015;43(3):569-75. doi: 10.1111/jlme.12300.

Abstract

There has been considerable debate on which genomic research results to return to participants and when those results should be returned, but little attention to how those results should be returned, especially to minority and culturally diverse participants. This paper explores the cultural and ethical considerations around returning research results to participants and families of culturally diverse backgrounds, with a special focus on considerations when the research participant is deceased, and raises points for further discussion.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Consent Forms
  • Cultural Diversity
  • Culture*
  • Death*
  • Decision Making
  • Disclosure / ethics*
  • Family*
  • Genetic Research / ethics*
  • Humans