The self-management experience of patients with type 2 diabetes and chronic kidney disease: A qualitative study

Chronic Illn. 2016 Mar;12(1):18-28. doi: 10.1177/1742395315614381. Epub 2015 Nov 3.


Background: The purpose of this study was to explore views related to the self-management of type 2 diabetes and chronic kidney disease.

Methods: We conducted three semi-structured focus groups in participants with type 2 diabetes and chronic kidney disease. Interviews were transcribed, coded, and analyzed using thematic analysis. Credibility was supported through triangulation of data sources and the use of multiple investigators from different disciplines.

Results: Twenty-three adults participated. Three major themes were identified: emotional reactions to health state, the impact of family dynamics on self-management, and the burden of self-management regimens. Family dynamics were found to be a barrier and support to self-management, while complicated self-management regimens were found to be a barrier. Additionally, participants expressed several emotional reactions related to their CKD status, including regret related to having developed CKD and distress related both to their treatment regimens and the future possibility of dialysis.

Conclusions: This exploratory study of patients with type 2 diabetes and chronic kidney disease describes barriers and supports to self-management and emotional reactions to chronic kidney disease status. Future research should confirm these findings in a larger population and should include family members and/or health care providers to help further define problems with self-management in patients with type 2 diabetes and chronic kidney disease.

Keywords: Adherence; chronic kidney disease; diabetes; patient education.

MeSH terms

  • Aged
  • Diabetes Mellitus, Type 2 / complications
  • Diabetes Mellitus, Type 2 / therapy*
  • Family Relations
  • Female
  • Focus Groups
  • Health Knowledge, Attitudes, Practice
  • Humans
  • Male
  • Middle Aged
  • Motivation
  • Physician-Patient Relations
  • Qualitative Research
  • Renal Insufficiency, Chronic / complications
  • Renal Insufficiency, Chronic / therapy*
  • Self Care* / psychology
  • Surveys and Questionnaires