The self as capital in the narrative economy: how biographical testimonies move activism in the Global South

Sociol Health Illn. 2016 May;38(4):592-609. doi: 10.1111/1467-9566.12381. Epub 2015 Nov 19.

Abstract

This article analyses and theorises the practice of biographical storytelling of HIV-positive AIDS activists in South Africa. Combining research in illness narratives, studies of emotions in social activism and analysis of global health institutions in Africa, I explore how biographical self-narrations are deployed to facilitate access to resources and knowledge and thus acquire material and symbolic value. I illustrate my argument through the analysis of the case of an AIDS activist who became a professional biographical storyteller. Based on the analysis which I claim to represent wider dynamics in human-rights-based health activism in the Global South, I propose the concept of narrative economies by which I mean the set of exchange relationships within which biographical self-narrations circulate and produce social value for individuals and organisations.

Keywords: Africa; HIV/AIDS; biographical research; economy; human rights; illness narratives.

MeSH terms

  • Acquired Immunodeficiency Syndrome / psychology
  • Biographies as Topic*
  • Communication
  • Humans
  • Life Change Events*
  • Narration*
  • Socioeconomic Factors
  • South Africa