Web-Based Intervention for Nutritional Management in Cystic Fibrosis: Development, Usability, and Pilot Trial

J Pediatr Psychol. 2016 Jun;41(5):510-21. doi: 10.1093/jpepsy/jsv108. Epub 2015 Nov 18.


Objectives: Usability and pilot testing of a web intervention (BeInCharge.org [BIC]) of behavior plus nutrition intervention for children with cystic fibrosis (CF) ages 4-9 years.

Methods: Think Aloud methodology was used with five mothers to assess usability and refine the intervention. A pilot trial was then conducted with 10 mothers of children with CF ages 4-9 years randomized to the web-based BIC or a Standard Care Control (STC). Change in weight gain for each group was compared in a pre-to-post design.

Results: Mothers rated the usability and clarity of BIC highly. The pilot trial showed children of mothers who received BIC had a significant change in weight pre-to-post-treatment (0.67 kg, p = .04). Change for the STC was not significant (0.41 kg, p = .10).

Conclusions: A web-based behavior plus nutrition intervention appears promising in increasing weight gain in children with CF.

Keywords: behavioral intervention; cystic fibrosis; nutrition; web intervention.

Publication types

  • Randomized Controlled Trial

MeSH terms

  • Behavior Therapy
  • Child
  • Child, Preschool
  • Combined Modality Therapy
  • Cystic Fibrosis / diet therapy*
  • Cystic Fibrosis / therapy
  • Female
  • Humans
  • Internet*
  • Male
  • Pilot Projects
  • Single-Blind Method
  • Telemedicine / methods*
  • Treatment Outcome
  • Weight Gain