A survey of views and practice patterns of dialysis medical directors toward end-of-life decision making for patients with end-stage renal disease

Palliat Med. 2016 Jul;30(7):653-60. doi: 10.1177/0269216315625856. Epub 2016 Jan 26.

Abstract

Background: Patients with end-stage renal disease report infrequent end-of-life discussions, and nephrology trainees report feeling unprepared for end-of-life decision making, but the views of dialysis medical directors have not been studied.

Aim: Our objective is to understand dialysis medical directors' views and practice patterns on end-of-life decision making for patients with ESRD.

Design: We administered questionnaires to dialysis medical directors during medical director meetings of three different dialysis organizations in 2013. Survey questions corresponded to recommendations from the Renal Physicians Association clinical practice guidelines on initiation and withdrawal of dialysis.

Setting/participants: There were 121 medical director respondents from 28 states.

Results: The majority of respondents felt "very prepared" (66%) or "somewhat prepared" (29%) to participate in end-of-life decisions and most (80%) endorsed a model of shared decision making. If asked to do so, 70% of the respondents provided prognostic information "often" or "nearly always." For patients with a poor prognosis, 36% of respondents would offer a time-limited trial of dialysis "often" or "nearly always", while 56% of respondents would suggest withdrawal from dialysis "often" or "nearly always" for those with a poor prognosis currently receiving dialysis therapy. Patient resistance and fear of taking away hope were the most commonly cited barriers to end-of-life discussions.

Conclusion: Views and reported practice patterns of medical directors are consistent with clinical practice guidelines for end-of-life decision making for patients with end-stage renal disease but inconsistent with patient perceptions.

Keywords: Terminal care; decision making; end-stage kidney disease; physician practice patterns; renal dialysis.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Aged
  • Attitude of Health Personnel*
  • Decision Making*
  • Female
  • Humans
  • Kidney Failure, Chronic / therapy
  • Male
  • Middle Aged
  • Physician Executives / psychology*
  • Practice Patterns, Physicians'*
  • Renal Dialysis
  • Terminal Care / psychology*
  • Terminal Care / standards*
  • United States