[Social representation of Alzheimer's disease for family caregivers: stressful and rewarding]

Rev Esc Enferm USP. 2016 Feb;50(1):81-7. doi: 10.1590/S0080-623420160000100011.
[Article in Portuguese]

Abstract

Objective: To understand the content of Social Representation (SR) of family caregivers of Alzheimer's disease patients.

Method: Interviews were conducted with 26 caregivers and analyzed by the ALCESTE software.

Results: The SR content was structured in two thematic axes called Daily Life and Care and Medical and Emotional Concepts and Outcomes. The first axis creates images related to the routine of interaction with the sick person, and contains a description of care procedures, experiences, and practices applied every day. The second is composed of subjective and conceptual aspects that make up the social representation of Alzheimer's disease, with meanings related to the emotional, medical, and biological contexts.

Conclusion: Due to the importance of topics related to patients' dependence and the personal and emotional consequences of the disease, overload is the main content of the SR of Alzheimer's disease for caregivers, and the understanding of these SR by health professionals should support the planning of interventions addressing this group of individuals.

Publication types

  • English Abstract

MeSH terms

  • Adult
  • Alzheimer Disease*
  • Caregivers* / psychology
  • Female
  • Humans
  • Male
  • Middle Aged
  • Sociological Factors
  • Young Adult