PETS-D (parents education through simulation-diabetes): Parents' qualitative results

Patient Educ Couns. 2016 Aug;99(8):1362-7. doi: 10.1016/j.pec.2016.03.019. Epub 2016 Mar 19.

Abstract

Objective: Parents who have a child newly diagnosed with type 1 diabetes (T1D) must quickly learn daily diabetes self-management. An RCT was conducted using human patient simulation (HPS) to enhance parents learning diabetes self-management with children with new-onset T1D. The purpose of this study was to describe parents' perspectives of using HPS to augment diabetes education.

Methods: A qualitative descriptive design was used with open-ended in-depth interviews of parents (n=49) post-intervention. Qualitative directed content analysis was used.

Results: The majority of parents were positive about learning with HPS. Although a few parents said the HPS was "hokey" or "creepy," most reported the visual and hands-on learning was realistic and very beneficial. Seeing a seizure increased their fear although they would have panicked if they had not had that learning experience, and it helped build their diabetes self-management confidence. Recommendations included teaching others with the HPS (grandparents, siblings, babysitters, and school nurses).

Conclusion: HPS-enhanced education is an acceptable and viable option that was generally well-received by parents of children with new-onset T1D.

Practice implications: The technique should be studied with parents of children with other chronic illnesses to see if the benefits found in this study are applicable to other settings.

Keywords: HPS; Parent education; Simulation; Type 1 diabetes; Vignette.

Publication types

  • Randomized Controlled Trial
  • Research Support, N.I.H., Extramural

MeSH terms

  • Adult
  • Child
  • Diabetes Mellitus, Type 1 / psychology*
  • Diabetes Mellitus, Type 1 / therapy*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Parents / education*
  • Parents / psychology
  • Patient Education as Topic / methods*
  • Patient Outcome Assessment
  • Qualitative Research
  • Self Care / methods*
  • Self Care / psychology
  • Self Efficacy
  • Simulation Training / methods*