Identifying Ethical Issues in Mental Health Research with Minors Adolescents: Results of a Delphi Study

Int J Environ Res Public Health. 2016 May 11;13(5):489. doi: 10.3390/ijerph13050489.

Abstract

Research with minors, especially for preventive purposes, e.g., suicide prevention, investigating risk or self-destructive behaviors such as deviance, drug abuse, or suicidal behavior, is ethically sensitive. We present a Delphi study exploring the ethical implications of the needs formulated by researchers in an international pre-conference who would benefit from ethics support and guidance in conducting Mental Health Research with minors. The resulting List of Ethical Issues (LEI) was submitted to a 2-rounds Delphi process via the Internet, including 34 multidisciplinary experts. In the first round, the experts reviewed the LEI and completed a questionnaire. Results from this round were analyzed and grouped in nine categories comprising 40 items. In the second round, the experts had to agree/disagree with the needs expressed in the LEI leading to a final list of 25 ethical issues considered relevant for Mental Health Research with minors such as: confidentiality of the sensitive data, competence for consenting alone and risk of harm and stigma related to the methodology used in research. It was shown that studies like SEYLE (Saving and Empowering Young Lives in Europe) trigger among researchers wishes to obtain specific recommendations helping to comply with standards for good practice in conducting research with minors.

Keywords: Delphi; SEYLE (Saving and Empowering Young Lives in Europe); assent/consent of minor; capacity to consent; confidentiality; research ethics; risk of harm; sensitive topics.

MeSH terms

  • Adolescent
  • Confidentiality
  • Delphi Technique
  • Ethics, Research*
  • Humans
  • Internet
  • Mental Health*
  • Minors*
  • Self-Injurious Behavior
  • Suicide