The big health data sale: As the trade of personal health and medical data expands, it becomes necessary to improve legal frameworks for protecting patient anonymity, handling consent and ensuring the quality of data

EMBO Rep. 2016 Aug;17(8):1103-5. doi: 10.15252/embr.201642917. Epub 2016 Jul 11.

Abstract

The trading of personal medical and health data will drastically increase given the boon of mobile devices used to monitor health, and the interest large internet companies have in this resource. Legal frameworks need to be adapted and upgraded to protect patient privacy and consent, and to ensure the quality of individual health data for research.

MeSH terms

  • Data Anonymization*
  • Health*
  • Humans
  • Informed Consent / legislation & jurisprudence*
  • Statistics as Topic / legislation & jurisprudence*
  • Technology
  • Telemedicine
  • Trust