Development of the Emotion Dysregulation Inventory: A PROMIS®ing Method for Creating Sensitive and Unbiased Questionnaires for Autism Spectrum Disorder

J Autism Dev Disord. 2018 Nov;48(11):3736-3746. doi: 10.1007/s10803-016-2907-1.


The lack of sensitive measures suitable for use across the range of functioning in autism spectrum disorder (ASD) is a barrier to treatment development and monitoring. The Emotion Dysregulation Inventory (EDI) is a caregiver-report questionnaire designed to capture emotional distress and problems with emotion regulation in both minimally verbal and verbal individuals. The first two phases of the EDI's development are described, including: (1) utilizing methods from the Patient-Reported Outcomes Measurement Information System (PROMIS®) project to develop the item pool and response options; and (2) assessment of the EDI in psychiatric inpatients with ASD. The results suggest that the EDI captures a wide range of emotion dysregulation, is sensitive to change, and is not biased by verbal or intellectual ability.

Keywords: Autism Inpatient Collection; Autism spectrum disorder (ASD); Emotion regulation; Patient-Reported Outcomes Measurement Information System (PROMIS®); Psychiatric inpatients; Questionnaire development.

MeSH terms

  • Adult
  • Autism Spectrum Disorder / diagnosis
  • Autism Spectrum Disorder / psychology*
  • Child
  • Emotions
  • Female
  • Humans
  • Male
  • Surveys and Questionnaires / standards*