Integrating Patient Concerns into Parkinson's Disease Management

Curr Neurol Neurosci Rep. 2017 Jan;17(1):3. doi: 10.1007/s11910-017-0717-2.

Abstract

Parkinson's disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.

Keywords: Caregiver burden; Economic burden; Knowledge and awareness; Mobile health technology; Natural history; Non-motor symptoms; Parkinson’s disease; Patient perspective; Patient satisfaction; Patient-centred care; Personalized medicine; Quality of life; Sensors; Specialty care; Telehealth; Telemedicine; Work.

Publication types

  • Review

MeSH terms

  • Caregivers
  • Humans
  • Parkinson Disease / therapy*
  • Patient Satisfaction
  • Precision Medicine
  • Quality of Life