Moving toward a shared process: The impact of parent experiences on perinatal palliative care

Susan L Hasegawa; Jessica T Fry

doi:10.1053/j.semperi.2016.11.002

Moving toward a shared process: The impact of parent experiences on perinatal palliative care

Semin Perinatol. 2017 Mar;41(2):95-100. doi: 10.1053/j.semperi.2016.11.002. Epub 2017 Feb 24.

Authors

Susan L Hasegawa¹, Jessica T Fry²

Affiliations

¹ Division of Neonatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Box 45, 225 E. Chicago Ave, Chicago, IL 60611.
² Division of Neonatology, Ann & Robert H. Lurie Children's Hospital of Chicago, Box 45, 225 E. Chicago Ave, Chicago, IL 60611. Electronic address: jtfry@luriechildrens.org.

PMID: 28238454
DOI: 10.1053/j.semperi.2016.11.002

Abstract

Perinatal palliative care programs seek to support parents expecting a baby diagnosed with a serious medical condition. Clinicians have increasingly recognized the importance of parental perspectives on the medical care mothers and their fetuses and live-born children receive, especially regarding factors influencing individual choices and knowledge of the medical community. We describe, using literature on trisomy 13 and trisomy 18, how information shared between parents and providers can improve perinatal counseling and family support.

Keywords: Decision Making; Neonatal; Palliative care; Parent experiences; Perinatal; Trisomy 13; Trisomy 18.

MeSH terms

Chromosome Disorders*
Chromosomes, Human, Pair 13
Chromosomes, Human, Pair 18
Decision Making*
Female
Humans
Infant, Newborn
Palliative Care*
Parents*
Perinatal Care*
Pregnancy
Professional-Family Relations
Social Support
Trisomy 13 Syndrome
Trisomy 18 Syndrome
Trisomy*