Skip to main page content
U.S. flag

An official website of the United States government

Dot gov

The .gov means it’s official.
Federal government websites often end in .gov or .mil. Before sharing sensitive information, make sure you’re on a federal government site.

Https

The site is secure.
The https:// ensures that you are connecting to the official website and that any information you provide is encrypted and transmitted securely.

Access keys NCBI Homepage MyNCBI Homepage Main Content Main Navigation
. 2017 Feb 10:2016:894-903.
eCollection 2016.

Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology

Andrew D Miller  1 , Ari H Pollack  2 , Wanda Pratt  3
Affiliations

Bursting the Information Bubble: Identifying Opportunities for Pediatric Patient-Centered Technology

Andrew D Miller et al. AMIA Annu Symp Proc. .

Abstract

Although hospital care is carefully documented and that information is electronically available to clinicians, few information systems exist for patients and their families to use while they are in the hospital. Information often appears trapped within the hospital room. In this paper, we present findings from three participatory design sessions that we conducted with former patients, their parents, and clinicians from a large children's hospital. Participants discussed challenges they faced getting information while in the hospital, and then designed possible technological solutions. Participants designed technologies aimed at extending parents' access to and involvement in patients' care. Their designs showed opportunities for health informatics within and beyond the children's hospital room: to allow parents and children to disseminate information from within, access information from the hospital room remotely, establish pervasive and collaborative communication with the clinical care team, and learn about their child's care throughout the hospital stay.

PubMed Disclaimer

Figures

Figure 1.
Figure 1.
Two parents design during Session 1.
Figure 2.
Figure 2.
About me, featuring patient-provided video, and medical as well as personal information.
Figure 3.
Figure 3.
A detail of the OneDocAwav design.
Figure 4.
Figure 4.
Part of the Shared calendar design.
Figure 4.
Figure 4.
A child participant demonstrates the Parent-clinician watch design.
See this image and copyright information in PMC

Similar articles

See all similar articles

Cited by

See all "Cited by" articles

References

    1. Doherty C, Stavropoulou C. Patients’ willingness and ability to participate actively in the reduction of clinical errors: a systematic literature review. Soc Sci Med. 2012 Jul;75(2):257–63. - PubMed
    1. Wolff JL, Roter DL. Family presence in routine medical visits: a meta-analytical review. Soc Sci Med. 2011 Mar;72(6):823–31. - PMC - PubMed
    1. Skeels M, Tan DS. Identifying opportunities for inpatient-centric technology. IHI '10: Proceedings of the 1st ACM International Health Informatics Symposium; 2010 Nov; 580 pp.
    1. Tan M, Hooper Evans K, Braddock CH, Shieh L. Patient whiteboards to improve patient-centred care in the hospital. Postgraduate Medical Journal. 2013 Sep 19;89(1056):604–9. - PubMed
    1. Prey JE, Woollen J, Wilcox L, Sackeim AD, Hripcsak G, Bakken S, et al. Patient engagement in the inpatient setting: a systematic review. J Am Med Inform Assoc. 2014 Jul;21(4):742–50. - PMC - PubMed

LinkOut - more resources