'I was just so different': The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships

Autism. 2017 Aug;21(6):661-669. doi: 10.1177/1362361316687987. Epub 2017 Mar 22.

Abstract

Existing literature exploring autism spectrum disorders within female populations predominantly utilises quantitative methodology. A limited number of small-scale, qualitative studies have explored the experiences of adolescent girls with autism spectrum disorder, but adult women have remained largely unheard. This study aims to broaden the stories told within autobiographical literature and empower those within the wider community of women with autism spectrum disorder. In doing so, it seeks to extend existing conceptualisations of experience to include socially and culturally located factors. A qualitative methodology was adopted, utilising multi-stage narrative analysis. Seven semi-structured interviews with women who received a diagnosis in adulthood were conducted. Recruitment spanned community mental health services, an inpatient service and a community support group. From the women's diverse experiences and stories emerged two broad categories related to gender identity and social relationships. The findings are discussed in relation to existing constructs of autism in women.

Keywords: autism spectrum disorders; qualitative research; social behaviour; social cognition.

MeSH terms

  • Adult
  • Autism Spectrum Disorder / diagnosis*
  • Autism Spectrum Disorder / psychology
  • Female
  • Gender Identity*
  • Humans
  • Interpersonal Relations*
  • Interviews as Topic
  • Male
  • Middle Aged
  • Sex Factors
  • Young Adult